Sunday, July 14, 2013

Survivor Story #15-Whipple after Stage 4


Patient Spotlights

Read Bill's story.
Read Bill's story from his wife, Janice.

Bill Gillmore's Story

Bill Gillmore's Story
Bill Gillmore and his wife, Janice, in early 2010. Bill has a clean bill of health after his surgery at the pancreatic cancer to remove an"inoperable" pancreatic tumor.
In March 2009, I was diagnosed with advanced pancreatic cancer. The cancer involved the blood vessels surrounding my pancreas and had also spread to my liver. I had terminal, inoperable pancreatic cancer. This news was delivered on my 25th wedding anniversary. My wife and I were devastated, finding little hope in the death sentence I had been given.
I began my chemotherapy in Houston immediately, pledging to fight against my disease. I was not ready to die. Even as life became an endless array of lab tests, chemo infusions, and doctor visits, I tried hard to plan for the future and to make my life take on the meaning it once had.
At the end of my first 9 weeks of chemo, I was given good news. The cancer had disappeared from my liver, and the pancreas tumor had shrunk to half its original size. Shortly thereafter, I began another regimen of chemotherapy, and within these next 9 weeks, my body continued to respond. At the end of this second cycle my oncologist granted me a "chemo holiday," declaring that I would not be given more chemotherapy until things began to worsen.
I was ecstatic, and for the summer months I walked around as if I had beaten the cancer. I talked about my future, got new clothes, lined up activities, and began to believe in things again. I told my friends, I was one of the lucky ones and that I was going to survive.
However, by November, as my weight began to drop and my energy began to fade, the familiar dark cloud returned. I met with my oncologist who explained that although the chemotherapy had decreased the size of my pancreatic mass I was still inoperable, without an operation I would not survive. I again was devastated, feeling lost, hopeless and defeated.
In search of more information and support, I tirelessly surfed the Internet. After reading horrifying statistics and depressing patient anecdotes, I stumbled across a website that read, "offering some hope to those 35% of pancreatic cancer patients considered to be inoperable." These words shook my inner core. Hope.
The website belonged to the Pancreas Center at Columbia University Medical Center. I immediately showed my wife and called to make an appointment. I was scheduled to see Dr. Chabot for a consult in early February. I had a chance, I was going to the Super Bowl, and I was a contender. I was on my way to New York.
When I arrived at the Pancreas Center, I was treated like an old friend and was immediately made to feel comfortable. Within a few minutes I was called into Dr. Chabot's office where I was introduced to Dr. Chabot. He was very personable and intent on learning everything about me, who I was beyond just my medical history. He explained that a major vein had been completely blocked by the cancer but he reassured me that he was prepared to perform the resection if I was ready to accept the risks.
This was an easy decision, Dr. Chabot was able to offer me what I had thought was impossible, a chance to live.
That afternoon I met with several nurses and administrators to arrange and finalize my procedure. Although there were many patients present, I was amazed at their care and attention. As I left that day and returned to Texas, I felt as if I had joined the Pancreas Center team and that I was a desired member. I was confident that my teammates would work hard to save my life.
The day of my surgery finally arrived, and while the details of that day are a blur, the surgery went smoothly. As I recovered in the hospital, Dr. Chabot and his surgical team followed up diligently each day. I was surprised at the time Dr. Chabot would spend with me on these visits. The empathy and dedication that he put into my care was incredible; his sincerity put me at ease.
One evening while my wife was visiting, Dr. Chabot came around to check on my progress. He said that my wounds looked very good and that I was recovering well, even better than he had expected. He then explained that the biopsy results had returned and confirmed that I was cancer free. We had won. My wife embraced Dr. Chabot as she laughed and cried. That moment will forever be engraved in my mind. Tears ran down my own face as I realized that I was one of the lucky ones, I was going to survive. Life was going to be really good.
My wife and I flew home on our 26th wedding anniversary with my future as an anniversary present from Dr. Chabot and the Pancreas Center. For that gift, I will be eternally grateful.
My recovery is complete. I am active—I began working stained glass, caught up with neglected yard work, went camping. I have a life. Thank you to Dr. Chabot and to all of the Pancreas Center staff. Thank you, thank you so very much. The world is a better place because of all of you. Your compassion, tireless effort, and dedication to the fight against pancreatic cancer will allow others to remain hopeful and to dream—just as you have allowed me.


Read the original post here:  http://pancreasmd.org/guide_spotlights_gillmore.html

1 comment:

  1. This story was posted in July of 2013. The thing is -- as anyone with this dreaded disease can tell you -- the gift of time comes each and every day. Bill Gillmore, my husband, died on January 6, 2012. Bill and I had what we looked forward to as "days and days" -- well over 1,000 days of normal life in his remission. That's 1,000 sunrises together, 1,000 sunsets together, and tens of thousands of opportunities to say "I love you". That is what is important. Not the "forever" time - as nothing is forever. We had normal life, which was all Bill wanted. To be honest, I believe that Bill would still be alive today if he did not have the surgery but stayed on the GTX chemotherapy. His cancer would never be erradicated by it, but it was well-controlled by it. In Cancer Land, you have to look at life with the disease as the two are not mutually exclusive. There are folks who have lived several years on chemo -- *several* years, not just two or three. Chris Parrish (of the Cancer Treatment Centers of America site and Facebook pages) has lived about eight years or more with the same disease, adenocarcinoma of the pancreas, while taking ongoing chemotherapy treatments. That was not for my Bill. He abhorred having "chemo brain". Even on his weeks off of chemo, he had short-term memory issues, concentration issues, and a slower reaction time. Bill was a Type A, highly intelligent (IQ 160), hard-charging, risk-taking, "You are burning daylight!" kind of guy. He had quite decided views and delighted in political debate. By profession, he was an engineer and solving problems was his passion. He told me a prolonged life with chemo brain was not the life for him. He wanted life in remission, no matter how long or how short. He wanted, as he said, to be a contender. He knew the odds and was more than willing to take the chance. He was so grateful for that two years of normal life. And it was a normal life -- as normal as life could be with monthly blood tests and CAT scans. We had the usual adventures; we had happy times with family. At the very end, he said he wouldn't have done it any other way. He lived his life on his own terms and died on his own terms. It was what he always wanted. I am grateful for him having that opportunity. I only hope I can have the same control of my end destiny!

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